The Journey of the Purple Snowflake 2

The Journey of the Purple Snowflake

The journey to becoming Purple Snowflake is long and arduous!

It takes you through many parts of the body, mind, and soul

It cuts, slices, ravages

It destroys, it even kills

The journey to becoming

Why are we on this journey?

No one will ever know, not even us

We hit many roads of lumps, bumps, and pains unknowingly

We see many people who tell us what is wrong

They say you have a mysterious disease

We get looked at as if we are plagued – we are

The mysterious disease is called Sarcoidosis

We slide into the abyss of pulmonologist, dermatologist, neurologist, and cardiologist

But do they really know?

We get thrown into the world of medications

Remicade, Methotrexate, Plaquenil, Prednisone

But do they help?

Can there be a cure for this devastating journey….

Talking, walking, working, and waiting endlessly

Raising awareness

For that glorious cure

We wear purple to represent the regal fight against Sarcoidosis

The symbol…… a snowflake

Individuality – no one is the same – we are different

Awaiting for this mysterious disease to disseminate

We are the Purple Snowflakes….. Sarc Warriors

Which is our journey of becoming

We continue to grow limp and fatigue on a daily basis

Waiting for this journey to end!

In the meantime we will stand tall with all Sarc Warriors

Alongside the scientists, doctors, and….

The researchers who are working towards a magical cure

We reach out to others with this mysterious disease

We cry, we share, we support, we teach, we love

We wait, we pray

We continue to fight the fight

Sarcoidosis is our journey to becoming

A Purple Snowflake…..

Published by Regina Kay Gordon

Founder of Sarcoidosis Fort Wayne, Support Group

Updated 6/16/2017